Little Jonpaul update-June 12th

Hi all,
We've given this new medication a try (Clobezam) for about two weeks now, and still not working entirely. While he's having less clusters, he's still not seizure free. We're incrementally upping his dose in hopes of getting seizure freedom.

We'll give this medicine a few more weeks or so, and then it's off to a few more possibilities. Likely either a special high-fat diet called ketogenic diet, or another round of steriods. In the meantime, little JP seems to like doing his exercises, to a point :). Most days he's pretty socialable and happy to be around all the family (especially his sisters!), but other days he's a bit more dazed. Considering how medicated he is he's doing pretty well overall in terms of his interaction. We have those weekly physical therapy appointments that benefit him greatly, and every day Cortney and I work with him doing exercises.

The girls are great. Skylar and Stella are both done with school and enjoying summer so far, although Cortney and I with they would take to sleeping in a bit now that there's no school! Soleil is turning into quite a little ham and brings quite a comedic element to every day life around here....They all have quite different personalities, it makes the house quite uptempo and fun...and busy too :)

I hope you all are enjoying summertime!